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Girl, 17, battling rare disease that transforms her muscle into a second skeleton
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Girl, 17, battling rare disease that transforms her muscle into a second skeleton
  • Published_at:2013-07-29
  • Category:News & Politics
  • Channel:iknewitb4u
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  • description: Seanie Nammock has FOP - an incredibly rare genetic condition Her muscle and tendons are slowly turning to bone The slightest knock can cause painful flare-ups and lock up her body Just 600 people in the world have FOP, which receives little funding With her painstakingly-applied make up and fashionable clothes, Seanie Nammock is like any other teenager. But behind her stylish looks, the teenager is battling a devastating genetic condition that is slowly paralysing her. The 17-year-old, from West London, is suffering from fibrodysplasia ossificans progressiva (FOP), a disorder that is turning her muscle and tendon into bone.
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